Comments on: On Renaming “Lupus”

By: Dad Life | From My Viewfinder

Dad Life | From My Viewfinder — Thu, 15 Jul 2010 04:42:47 +0000

[...] life-altering, and life-shortening disease Lupus (which he has unofficially renamed Chronic Hellitis) for several years and is now at the point of needing a kidney [...]

By: Holly Modarelli-Earley

Holly Modarelli-Earley — Wed, 14 Jul 2010 15:33:49 +0000

The Royal Swi-Fu!

By: Megan Dzwieleski

Megan Dzwieleski — Wed, 14 Jul 2010 06:00:54 +0000

I’ve had Lupus for 10 years now & it is amazing the amount of people who have no idea what it is. Everyone knows what cancer & aids are, but unless they know someone with Lupus it is a mystery. Not only does it need a scarier name but the pretty purple butterfly symbol should go. Gotta go with Chronic Hellitis as my pick. Thanks for lifting our spirits with your blog!

By: wazydj

wazydj — Wed, 14 Jul 2010 04:15:19 +0000

I just wanted to say thank you for a humorous, but VERY TRUE, look at Lupus!!! I too have this DEADLY disease and I’m suffering most with the Congestive Heart Failure. Obviously, there are other organ issues which I won’t bore you with. If you need, or want, to talk I’m on facebook!

Melissa

By: Newyork922

Newyork922 — Mon, 12 Jul 2010 18:15:32 +0000

zapthelifeouttamelupititus= zap the life outta me luputititus
stupid lupus as my 5 year old grandaughter calls it when i cant play with her . this illness has zap the life out of me and there isnt a day that i dont have pain. im sure im not the only one and all those that have it know what im talking about . you take meds that dont really help you have nausea all the time , headache , belly ache body ache, skin all in a flare hair loss, nails that are brittle and falling out face in a rash not a pretty site nor is it pleasant for the person having a flare. wishing that thier lifes would be back to normal and that day just isnt happening. looking back and thinking what chould have i done to avoid this ” nothing” so we live our lives the best we can , meds , rest , darkness..i dont want to paint a grim picture but it is what it is….. sending you all lupie hugzzz and prayers that we can have better days to come and a cure is just around the corner….