The Simple Choice
“It comes down to a simple choice: get busy livin’ or get busy dyin’.” – Andy Dufresne, Shawshank Redemption
I had another one of those moments today.
It wasn’t when my kidney doc was explaining my options. It wasn’t when he used the words “dialysis” and “maybe next year” in sequence. It wasn’t when we reviewed my latest bloodwork, which has been trending worse and worse and worse.
It was during the ride home, with all of that happy mental data as a backdrop. Just before I got to the freeway, I looked in the rearview mirror.
We were being tailgated by a hearse.
I smiled the driest of smiles and just shook my head.
“Hilarious.”
YOU’VE GOT TO BE KIDNEY
Actually, it was sort of funny. If anyone would appreciate sarcastic harbingers of doom, it’s me. (Friends I see you nodding.)
As I said, there have been many “moments” – most of them not funny. Like in 2002, when clumps of hair were falling from my head. Like 2003, when severe arthritis prevented me from being able to get out of bed. Like 2004, when I ran around my house at midnight screaming – scraping my scalp to ribbons – because of a rash from an allergic reaction. Like 2005, when during a 3-day vomit-a-thon in the hospital I asked my wife, straight-faced, “Am I dying?” Like 2009, when a respected cardiologist frowned at the screen and said, “Mr. Timpanaro, you need open heart surgery.”
OK, so why this litany of pain? Everyone’s got a challenge, right?
CRASH & BURN
On one level, I’m writing this because this is what writers do. In order to deal with ‘moments’, some people huddle up with their spouse, some call friends, some people go to the bar, some people watch TV. I’ve actually done all of those to cope. But writing is a healthy ingredient for me. Maybe even cathartic. I’ve got a lot to think about – a lot to figure out here. So even if this tale of woe wears you out, just know it helped the writer!
The other thing? My docs are worried, and I have to say I’m a bit concerned about my longevity – maybe for the first time – really. My condition (Lupus & Lupus Nephritis) is sneaky because I rarely “look” sick. I’ve had decent stretches of time, living a relatively normal life. But other times – like recently – I feel like a wayward USS Enterprise that hasn’t docked in awhile; it’s low on supplies, low on fuel, and low on morale. Suddenly we traipse into enemy territory, where an ambitious Ferengi cruiser goes bonkers with photon torpedoes, and my ship is a speeding ball of flames crashing toward some uninhabited planet. I need someone to beam me out of here! Wake me up from this shitty dream where I may actually die! GO TO COMMERCIAL!!!
But this is real. And there’s a hearse tailgating me.
What this really means? I’m being forced to choose.
WHAT’S THE QUESTION?
After 8 years of chronic illness, you think through a lot of things: the physical, the mental, the spiritual, the solical, the metaphysical, the impossible, the miraculous. But thinking through doesn’t make you wiser, necessarily. The only way I feel wiser is that now I’m less dogmatic, and I’ve got better questions!
Here’s THE question for me:
“Are you going to choose to live, or are you going to choose to die?”
It reminds me of what I once heard about vets or trauma victims; that there are only two types. The first decides to make himself a complete success and overcomes ridiculous odds. He chooses to live, and wins. The second type sees the potential to be the first type, but fades into a victim-mentality, achieving little. He chooses to die, and loses.
I can’t possibly introduce every possible angle here, but the crux of the decision is lifestyle. It’s nutrition. It’s a dedication to mental health – by not crucifying myself for falling short. To change. To eliminate garbage and to give myself the best possible chance to live well for myself, my wife, my kids, my friends, and the world.
It seems like a simple choice.
But if you’ll pardon the continuation of the Star Trek theme, I’m low on fuel. I’m low on morale. I’ve got a great crew, but I’m even wearing them out. I need to be zapped right now by Dr. Beverly Crusher’s anti-nephritis doo-hickey!
Oh, well. You get the point. I need to choose to win. It sounds so simple yet it involves a lot. By reading this, you’ve probably done enough . . . unless you feel like doing laundry or juicing 50 pounds of celery!
To whomever is reading this, I appreciate YOU and I want you to be thankful for your health. Also, if you’re reading this through, you’ve likely done more for me than I’ve ever done for you (I checked – my stats are so lopsided on the “take!”) – so thank you.
And, no matter your trial, go get busy . . . doing you know what.
Related posts: Fatigue, Hospital Gown Push Me Over Edge, To Sabbatical
Dec 09, 2009
I think you’re on the best path. I read a lot of mountain survival stories, and the guys who make it off the really big hills after disaster strikes are the ones who WANT to make it off the big hills. They choose life over death. You’re making the hard choice to dig in your ice ax and crampons and consider alternative routes back to the base camp. I’m on belay, bro! Climb on!
Dec 09, 2009
So, reading about a friend that’s worried about his life being cut short isn’t exactly a mood lifter but at least it’s honest. Such a nice change (even if the news sucks) because most of us go through life saying “fine” anytime someone asks how we are even if we’re being followed by a hearse. If I get any say in this, I think you should choose to get busy living. Note to self – get busy living too dummy.
Dec 09, 2009
…happy to do laundry and juice celery any time, my friend.
Dec 09, 2009
Can’t tell you how grateful I am that the stinkin’ hearse only got as far as tailgaiting. And I’m grateful that you’ve decided to punch the gas (or even just move over a lane) to get that nasty thing off your a$$.
Just know that as a member of your auxiliary support crew, I’m up for laundry, juicing celery, or just encouraging you to write more.
Grateful for you and your continued journey back to authentic and complete health.
Dec 09, 2009
Thanks all for the kinds words & celery juice! Haven’t seen any hearses today . . yet!
Dec 09, 2009
[...] post” (yeah, the one I’m calling my #best09 challenge) and my transparency in it inspired The Simple Choice. And wow. Please go read it. For a gratitude/reality check. [...]
Dec 10, 2009
Always a great read, Jeff … even if it’s not the greatest topic.
I’d be happy to juice some Oregon-grown celery for ya … just tell me when you need it sent on down.
Dec 10, 2009
Thanks for putting my trivialities into perspective!
My beloved aunt suffers from Lupus and was told she wouldn’t live longer than a few years. That was over 20 years ago! She chooses to fight and LIVE everyday and has had the pleasure of watching her three children grow into adulthood, get married, and start families. Her strength inspires me.
“To eliminate garbage and to give myself the best possible chance to live well” Not always easy to follow through, but worth it!
Thank you,
Friend of a Friend